Archie
2005 – 2022
Archie Naughton was a remarkable young man who brought light and hope to everyone who knew him. Diagnosed with Duchenne muscular dystrophy at the age of six, Archie faced immense his challenges with courage, resilience, and a determination that inspired all around him. He was sports mad and had a particular passion for rugby. After Duchenne robbed his ability to play, he began training to be a coach with Creggs Ruby Club & Connacht Rugby. Archie was also privileged to be an assisted runner, and he completed races and marathons with his incredible fellow athletes as part of Team Archie. He was also a keen musician and played the drums from a young age. For his Make A Wish, Archie was so thrilled to be given the opportunity to play with his drumming idol Chad Smith and the rest of the band. If he wasn’t involved in sport or music, you would always find Archie on a tractor or in his adapted John Deere Gator on the farm. He was a passionate farmer, and his heart belonged to the land; it was in his blood.
Despite living with a terminal disease that gradually weakened his muscles, Archie never allowed it to define his spirit. His tenacity and zest for life were evident in everything he did. Whether he was raising awareness for Duchenne, participating in family initiatives to find a cure, or simply making those around him laugh, Archie showed the world the power of hope and the strength of the human spirit.
Archie died suddenly at the age of 16 in July 2022 due to heart failure; a complication of Duchenne Muscular dystrophy. His loss has left an immeasurable void in the lives of his family, friends, and the Duchenne community. Yet, his legacy endures as a beacon of hope for those still fighting and a reminder of why every effort to combat Duchenne is so vital.
Archie’s memory continues to inspire us to work tirelessly toward a future where no child or family has to endure the pain of Duchenne. His story reminds us of the importance of love, resilience, and the power of community in the face of adversity.
In honoring Archie’s life, we rededicate ourselves to the cause he championed with such passion—to find a cure for Duchenne and to ensure a brighter future for others affected by this disease. Archie will always be remembered for his bravery, his laughter, his love and the profound impact he had on everyone he met.
Thank you Archie for teaching us lesser mortals how to live.
May you rest in peace.
George
George is 14 years old and a twin. When he was 2 years old, he too was diagnosed with Duchenne Muscular Dystrophy. He is paralysed and faces the daily challenges of living with Duchenne Muscular Dystrophy with dignity and grace. The death of Archie has naturally been extremely difficult for George to process and to come to terms with. However, George is blessed with a gorgeous twin brother as well as some lovely friends. George is a passionate Artist and together with his dear friend and fellow artist, Rita Oates George has already had an art exhibition with more planned. He finds great solace in doing his artwork, going to the cinema, baking, attending youth theatre and spending time with the people he loves the most. George is very academic, and he loves school and nothing better than a political or philosophical debate. His two wishes are for a treatment to be found for Duchenne for everyone and to reach adulthood so that he is able to fulfill some of his dreams and ambitions.
George’s tenacity and resilience is inspiring, and he remains hopeful. George is incredibly grateful for all those who are working to provide treatments that could save his life. His determination and gratitude remind us all of the strength of the human spirit.
Isaac
Isaac is 14 years old and, and like his identical twin brother George, he lives with Duchenne Muscular dystrophy. Recently, Isaac underwent an intense nine-hour surgery to correct scoliosis, a testament to his incredible strength and resilience. Isaac is paralyzed and uses a wheelchair, but his spirit remains as strong as ever.
While Isaac can’t participate in sports due to the severity of Duchenne, he has a deep love for them, especially soccer, NFL, rugby, and ice hockey. He enjoys watching games and following his favorite teams with great enthusiasm. Isaac also loves to travel, bake, and take part in youth theater, where his creativity and energy shine. Going to the cinema and spending time with friends are some of Isaac’s favorite ways to relax and have fun.
An academic at heart, Isaac excels in school and loves learning. His dedication to his studies is remarkable, and he is always striving to do his best in everything he sets his mind to.
Isaac’s strength, determination, and passion for life are truly inspiring. Even with the challenges Duchenne brings, Isaac continues to approach each day with a positive attitude and a big heart. Isaac misses his big brother terribly but strongly believes that Archie continues to help and guide him.
Isaac is very, very grateful to each person that has supported the Trusts work in any way.
