Blog Archives

Join Our Boys Grant to Solid Bioscience

We are so happy to tell you that The Join Our Boys Trust recently awarded a €100,000 Grant to Solid Biosciences, in the hope it will help them accelerate part of their gene therapy programme. We are only able to

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‘Our children were going to die and there was nothing we could do about it’

‘Our children were going to die and there was nothing we could do about it’ In November 2012, Paula and Padraic Naughton were told their three sons, Archie, George and Isaac, had Duchenne Muscular Dystrophy, a fatal disease The last

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Mini Marathon 2017

We appreciate you are busy. We appreciate there are thousands of good causes that require support and funds. We also appreciate that so many of you understand our utter desperation and grief. This year we are aiming to ‘recruit’ 500

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Access to Treatment Translarna

For the past year The Trust has been engaging with key stakeholders in relation ensuring that once treatments become available for children and adults with Duchenne they can be accessed immediately. Unfortunately at present this process is complex and frustratingly

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Rare Disease Day

Today is Rare Disease Day, it takes place on the last day of February each year. The Join Our Boys Trust is committed to support this wonderful initiative. It is estimated that there are over 7000 Rare Diseases and the

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Jubilation Concert Tickets

Peter Regan and Heather Forgarty will hold a concert in the Hodson Bay Hotel, Athlone Thursday 30th June in Aid of the Join Our Boys Trust. For tickets CLICK HERE

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European Championship Tickets

Win tickets to Ireland v Italy in the European Championships. All you have to do is place a bid on the tickets and the highest bidder after the closing date will pick up the tickets.

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Wear orange Day 2016

Remember #‎WearOrangeDay is to raise awareness and funds for a GLOBAL Disease. It does not matter where you are in the world, YOU can make

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Wear Orange Day 2016

As we look forward to celebrating our 3rd Wear Orange Day we invite you to join us!
For those who are unaware, May 1st will be George

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We really need your help!!

Monday is World Duchenne Awareness Day 2015. It’s on the 7th of September, 7/9 in recognition of the 79 exons on the Dystrophin gene.

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