Blog Archives

77 Campaign

Please help us achieve our goal for Archieโ€™s 1st Death anniversary and to spread awareness for George and Isaac to find a cure. – Goal: 77k followers and 77 influential people for 7/7. We are getting there step by step

Posted in Events, News

How are you supposed to say Goodbye…

Please Share How are you supposed to say Goodbye to the most beautiful and remarkable human you have had the privilege to love? The void is ENORMOUS & we are all struggling to cope. Sincere thanks to everyone that has

Posted in News

As parents our only concern ever, is to protect our child(ren).

Please Share. As parents our only concern ever, is to protect our child(ren). However sometimes things happen that you have absolutely no control over. Duchenne is one such thing. Our beautiful heroic son Archie John has died and our hearts

Posted in News

When words continue to be utterly inadequate

When words continue to be utterly inadequate ๐Ÿ™๐Ÿ’”๐Ÿ™๐Ÿ’”๐Ÿ™ #PrayForArchie #NeverEVERGiveUp Archie is struggling to stay awake now. At one point last night he asked had anyone else sent him a video message (apart from one of the Chelsea Players; @jackcarty10

Posted in News

IRISH RAFFLE TO WIN A PS5

***IRISH RAFFLE TO WIN A PS5 & SUPPORT THE BOYS TO GET INTO THE HOUSE FOR CHRISTMAS*๐ŸŽ„ ๐Ÿ ๐ŸŽ…๐Ÿคถ We are so privileged that an anonymous donor has gifted a PS5 to The Trust to raise funds for The Join Our

Posted in News

Santa Paws For Our Boys

The Trust is happy to welcome you to this year’s main Christmas Fundraiser: ‘Santa Paws For Our Boys’ The challenge is that over the Festive period you take your four legged furry friend for a 5 K walk and then

Posted in Events, News

World Duchenne Awareness Day 2021.

Posted in News

Rainbow Tales by Reenie

Plase Share! We are so very lucky and privileged that people like Reah choose to support The Trust. Thank you very, very much Reah. Your book is so beautiful and will help so many children explore their thoughts and feelings.

Posted in News

“United We Play”

George and Issac are thrilled to share this news with you! A lovely friend called Faye Hayden has written a book about some incredible children and their lives …. and it includes George & Issac! Every child requires the same

Posted in News

Archie’s 3rd Dublin City Marathon

Archie will complete in his 3rd Dublin City Marathon this Sunday 27th of October 2019. Please support Archie by wearing Orange this Sunday. Support Archie’s campaign by donating here Donate

Posted in Events, News
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