Join the fight against
Duchenne Muscular Dystrophy (DMD)
Help the boys survive this disease
MARCH 30th 2019
3pm at the Elks Lodge 82-20 Queens Blvd., Elmhurst, NY 11373
Join Our Boys Trust was founded by parents Paula and Padraic Naughton with extraordinary support from their local community for all three of their sons, Archie (12), George & Isaac (7), who were diagnosed with a debilitating disease called Duchenne Muscular Dystrophy (DMD).
DMD is a muscle wasting disease that targets boys. Children struggle with all gross motor functions – anything to do with movement such as running, jumping and riding a bike are instead replaced with the necessity of a full time wheel chair by the time children reach 8 years of age.
Eventually the child is completely paralyzed and requires the support of a ventilator to breath. There is currently no treatment or cure for this disease and those who have DMD will eventually die of respiratory and/or heart failure by the time they reach their mid to late 20’s.
For Archie, George, Isaac and other children like them, The Join Our Boys Trust was established to raise funds to purchase a home that will provide them comfort and support their complex needs of daily living so they can remain as independent as possible for as long as possible and for critical gene research.
The Naughton family would “borrow” the house for the time required for the boys. The building of the house represents another opportunity; to bring greater awareness to this cause and find a cure for these boys and the thousands of other boys living with this disease.
Your support is critical to our efforts to provide a safe home for our boys. Our plan is to break ground by the end of this summer however we are far from reaching our funding goal to start construction. Time is precious for our boys to live in the best possible way for their time with us.
Please consider being a part of our family and take a moment of your time to visit our website, www.joinourboys.org, or email us at email@example.com to donate to this incredibly important cause.