Blog Archives

Access to Treatment Translarna

For the past year The Trust has been engaging with key stakeholders in relation ensuring that once treatments become available for children and adults with Duchenne they can be accessed immediately. Unfortunately at present this process is complex and frustratingly

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Rare Disease Day

Today is Rare Disease Day, it takes place on the last day of February each year. The Join Our Boys Trust is committed to support this wonderful initiative. It is estimated that there are over 7000 Rare Diseases and the

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Jubilation Concert Tickets

Peter Regan and Heather Forgarty will hold a concert in the Hodson Bay Hotel, Athlone Thursday 30th June in Aid of the Join Our Boys Trust. For tickets CLICK HERE

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European Championship Tickets

Win tickets to Ireland v Italy in the European Championships. All you have to do is place a bid on the tickets and the highest bidder after the closing date will pick up the tickets.

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Wear orange Day 2016

Remember #‎WearOrangeDay is to raise awareness and funds for a GLOBAL Disease. It does not matter where you are in the world, YOU can make

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Wear Orange Day 2016

As we look forward to celebrating our 3rd Wear Orange Day we invite you to join us!
For those who are unaware, May 1st will be George

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We really need your help!!

Monday is World Duchenne Awareness Day 2015. It’s on the 7th of September, 7/9 in recognition of the 79 exons on the Dystrophin gene.

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People are amazing; truly amazing!

On Saturday the 29th of August two special men, Robert Kerr, Archie, George & Isaac’s Uncle and a dear friend Luke Donegan are setting off to cycle from

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Malin to Mizen Head Cycle

Frank Lynn and his crew are cycling from Malin to Mizen head in Aid of Join Our Boys. The long grueling cycle started today and you can follow Frank and the team

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Wear Orange day!

Preparations are now in full swing for “Wear Oange Day 2015”. We are inviting you all to join us for our ‘Anniversary Join Our Boys March

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Finding Solutions In Ireland

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