Blog Archives

Duchenne Croke Park Conference

Ensuring Irish Duchenne Patients have access to treatment conference will be held in Croke Park this October 6th. National and international experts include Proferror Michael Barry Dr Elin Haf Davies Professor Keith Foster Dr Declan O’Rourke Christopher Jones, (Mitchell’sJourney) We

Posted in Events, News

VHI Women’s Mini Marathon

VHI Women’s Mini Marathon

Posted in Events, News

SSE Airtricity -Dublin City Marathon Video

Good Morning. We hope you are well. We know you are busy. We know you have your own worries and problems. If you can spare a few moments please watch this video and share with your circle. It would help

Posted in News

Table Quiz – St Faithleach’s Clubhouse, Ballyleague

Table Quiz – St Faithleach’s Clubhouse, Ballyleague Friday, Oct 20th @9.30pm Table of Four €40 Your Support would be much appreciated.  

Posted in Events

World Duchenne Awareness Day

Celebrating World Duchenne Awareness Day September 7th 2017 in Roscommon Town This day marks the 4th International World Duchenne Awareness Day. On this day the International Duchenne Community stands united to raise awareness of this catastrophic disease. We use it

Posted in News

Dublin City Marathon 2017

On the 29th of October 2017 Archie, who is now 11 years old will be completing the Dublin City Marathon with his friends from The Roscommon Harriers. Five of the Harriers, Sinead Gannon, Frank Murphy, Tonya Hand, Adrian Smith &

Posted in Events

Young Hero – Archie Naughton

Archie was honoured to be chosen for their ‘ Young Hero Award 2017’. He is extremly grateful to every one who voted for him. He had a lovely day with his family and friends. Young Hero – Archie Naughton Archie

Posted in News

Join Our Boys Grant to Solid Bioscience

We are so happy to tell you that The Join Our Boys Trust recently awarded a €100,000 Grant to Solid Biosciences, in the hope it will help them accelerate part of their gene therapy programme. We are only able to

Posted in News

Join Us for Wear Orange Day 2017

Join Us for Wear Orange Day 2017 Remember ‪#‎WearOrangeDay‬ is to raise awareness and funds for a GLOBAL Disease. It does not matter where you are in the world, YOU can make a massive difference! 1. Why not wear something

Posted in Events

‘Our children were going to die and there was nothing we could do about it’

‘Our children were going to die and there was nothing we could do about it’ In November 2012, Paula and Padraic Naughton were told their three sons, Archie, George and Isaac, had Duchenne Muscular Dystrophy, a fatal disease The last

Posted in News
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